The Economic Burden of Families with Autism Spectrum Disorders (ASD) Children in Malaysia

Sazlina Kamaralzaman, Hasnah Toran, Suziyani Mohamed, Nazmin Binti Abdullah

Abstract


The economic burden of families with Autism Spectrum Disorders (ASD) children that are far beyond the needs of typical children causes physical and mental stress for their parents. The study aims to examine the economic burden of parents with ASD children in Malaysia. Calculation is made using a cost-loss approach due to ASD that include direct, indirect and developmental costs. Using convenient sampling method, a total of 245 parents have filled out questionnaires through online or hard copies. Development costs represent the highest cost of RM20,989.33, followed by medical direct costs RM8,378.73, RM5,033.57 for non-medical direct costs and RM963.99 for indirect costs. The total cost of financing an ASD child is RM35,365.62 a year. This is a huge and burdensome amount for parents. The findings of this study may assist responsible parties in the planning of effective service provision to suit the need of parents with ASD children in Malaysia.


Keywords


economic burden, Autism Spectrum Disorders (ASD), parents, children.

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References


Autism Speaks Inc. (2012). Autism speaks. Retrieved from http://www.autismspeaks.org/index.php

Chaidez V., Hansen, R. L., Hertz-Picciotto, I. (2013). Gastrointestinal problems in children with autism, developmental delays or typical development. Journal of Autism Dev. Disord, 44(5), 17–27

Chakravarti, U. (2008). Burden of caring: families of the disabled in urban India. Indian Journal of Gender Studies, 15(2), 341-363.

Department of Social Welfare. List of facilities and privileges for Persons with Disabilities. [cited 2017 December 8] http://www.jkm.gov.my.

Honeycutt, A., Dunlap, L., Chen, H. (2004). Economic cost associated with mental retardation, cerebral palsy, hearing loss, and vision impairment-United States. Morbidity and Mortality Weekly Report; 53(3):57-59.

Mahadeva, S., Yadav, H., Everett, S. M. (2012). Economic impact of dyspepsia in rural and urban Malaysia: a population-based study. Journal of Neurogastroenterology and Motility, 18(1), 43-57.

Mendoza R. 2010. The Economics of Autism in Egypt. Journal of Economics and Business Administration 2(1), 12-19.

Neik, T., Lee, L. W., Low, H. M., Chia, N. K. H., & Chua, A. (2014). Prevalence, diagnosis, treatment and research on autism spectrum disorders (ASD) in Singapore and Malaysia. International Journal of Special Education, 29(1), 1-10.

Newacheck, P., Hughes, D., Stoddard, J., et al. 1994. Children with chronic illness and Medicaid managed care. Paediatrics; 93:497-500.

Nicholas, B. (2016). Research needs and priorities for transition and employment in autism: Considerations reflected in a “Special Interest Group” at the International Meeting for Autism Research. Emerging Perspectives. Ep.journalhosting.ucalgary.ca.

Rice, D. P. (1966). Estimating the cost of illness. Washington, D.C.: US Government Printing Office

Rossignol, D. A., Frye, R. E. (2012). Mitochondrial dysfunction in autism spectrum disorders: a systematic review and meta-analysis. Mol. Psychiatry, 17, 290–314.

Shamsul, A. S., Mohd, R. H., Muholan, K. (2013). Quality of life and its influencing factors among physically disabled teenagers in Kuala Lumpur, Malaysia. Malaysian Journal of Public Health Medicine, 13(2), 11-19.

Sivberg B. (2002). Coping strategies and parental attitudes, a comparison of parents with children with autistic spectrum disorders and parents with non-autistic children. Int J Circumpolar Health, 61(2), 36-50.

Sullivan, S. D., Ramsey, S. D., Lee, T. A. (2000). The economic burden of COPD. Chest, 117(2), 5-9.

Wake, M., Salmon, L., Reddihough, D. (2003). Health status of Australian children with mild to severe cerebral palsy: cross-sectional survey using the Child Health Questionnaire. Developmental Medicine and Child Neurology, 45(3), 194-199.

Weiss. M. J. (2002). Hardiness and social support as predictors of stress in mothers of typical children, children with autism, and children with mental retardation. Autism, 6, 115-30.

Yirmiya N., Shaked M. (2005). Psychiatric disorders in parents of children with autism: a meta-analysis. Journal Child Psychol Psychiatry, 46, 69-83.




DOI: http://dx.doi.org/10.17977/um005v2i12018p071

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